Wheelchair Warriors Fight for Cure
May 22, 2000
Source: Business Wire
SACRAMENTO, Calif.--As exhausted Sacramento legislators wrestle constituent needs and
budget realities back and forth, Fremont father Don. C. Reed sees the outcome in starkly
emotional terms.
"Will my paralyzed son, Roman Reed, get the chance to walk again? That's what the
budget means to me. The leadership of California will decide that question -- not only for
my son, but also for 450,000 other paralyzed Americans who might benefit," says Reed,
sponsor of Assembly Bill 750: the Roman Reed Spinal Cord Injury (SCI) Research Act.
"With an estimated $12 billion surplus," adds Reed, whose son was paralyzed
in a football accident five years ago, "We can afford to spend $25 million on cure
research."
Chairperson of a dedicated group of wheelchair warriors and friends called Californians
For Cure, Reed has waged a two-year campaign to pass Assembly Bill 750, authored by
Assemblyman John Dutra of Fremont.
"It's time people realized the true costs of paralysis," says Assemblyman
Dutra, "Not just the $10.6 billion SCI paralysis cost our country in medical expenses
and lost wages last year, but the human costs, which are immeasurable."
Soft-spoken Karen Miner, co-chair of Californians for Cure, knows human costs.
"When I became paralyzed, it broke up my marriage. I was suddenly a single parent,
with two little girls to raise. It was difficult. But at least I could breathe on my own.
Some folks need machines to breathe. Others have continual pain, like being on fire. And
that's not even mentioning the endless indignities, like being catheterized for the
restroom."
Can this terrible condition be cured? "It is not a question of if, but when,"
says Dr. Wise Young of Rutgers University, adding that, "SCI research targets are
(also) highly relevant to Ahlzheimers's, ALS, Parkinson's, stroke and nearly 400 other
neurological diseases."
And in a treasured personal letter, Christopher Reeve had something to say to the
Reeds.
"One day, Roman and I will stand again, and walk away from our wheelchairs
forever."
And Roman Reed himself? Appearing before the Assembly Judiciary committee, the
broadshouldered 25-year-old said from his wheelchair:
"Let's take a stand, to cure paralysis. Take a stand -- so one day, everybody
can."
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