People ask many questions about how I do certain things since the
accident happened, such as, "How do you get ready in the morning?";
"How do you drive your wheel-chair?"; or "How do you eat?"
(you can get the answers to these questions on my
QUAD-FAQ page).
However, I've done a lot of speaking in college classes after the accident,
& there's one topic that generates quite a bit of interest:
Sexuality. The purpose of this page is to show that people with Spinal
Cord Injuries (SCI) can still have a very healthy and satisfying sex life.
The following text was copied from a web page that is no longer available,
and is meant for educational and personal use only. Even though
it was written in 1993, the information is, for the most part, current.
It's a pretty nice summary of a male quad's sexuality, so it should answer most
questions. If not, feel free to e-mail
me, & I'll be happy to try to answer any other questions you have.
Also, please understand that this is a general overview, & does not
particularly reflect my sexuality, or that of any other individual
who is quadriplegic. For instance, it covers topics such as jealousy,
anger, & depression. Jealousy just isn't an issue with me; it never
has been. And, while I sometimes still get angry or depressed about my
situation, I've never taken it out on a partner, or let it affect my
relationships, sexual or otherwise. Also, it doesn't talk about things
such as oral sex as an option. This can definitely be used to
satisfy one's partner. To get an idea of what it would really be like
to make love to a quadriplegic, rent
"Coming Home"
with Jane Fonda & Jon Voight. There is a very romantic, tasteful,
and accurate love making scene. Although Jon Voight plays a paraplegic,
it's still the closest I've seen to reality. Besides that, it's a good
movie! If you'd like to read more about sexuality and the disabled, see
my Disability Info links.
NOTE: This was written before the introduction of drugs such as
Viagra, Cialis,
or Levitra, so it is not included in
the Sexual Aids And Options section of
the following text. These products are also a recommended option for
males with SCI.
Spinal Cord Injury - InfoSheet #3
"Sexuality in Males with Spinal Cord Injury" Level - Professional
The following is an Information Sheet developed by the Training Office of The RRTC in
Secondary Complications in Spinal Cord Injury at UAB Spain Rehabilitation Center. It
contains information and resources on issues and concerns dealing with sexuality in males
with a spinal cord injury. For permission to reprint for further distribution, contact
Linda Lindsey:
via Internet - Lindsey@Sun.rehabm.uab.edu
(may not be an active e-mail address)
or write to RRTC Training Office, address and phone listed below.
Published by:
Medical RRTC in Secondary Complications in SCI
Training Office, Room 506, UAB-Spain Rehabilitation Center,
1717 6th Ave. S, Birmingham, AL 35233-7330
(205) 934-3283 or (205) 934-4642 (TTD only)
Date: December, 1993
INTRODUCTION
A spinal cord injury affects a male's sexuality both psychologically and
physiologically. The type and level of the spinal cord injury determine the extent that
the spinal cord injury affects his sexual functioning. He may face changes in his
relationships, his sexual performance, and his ability to biologically father children. He
also can expect changes in his feelings and concerns about his own sexuality.
It is important to remember that sexuality includes both emotional and physical
aspects, and may or may not involve a partner. The physical aspects of a relationship can
involve touching, kissing, or sexual intercourse. All aspects of the male's sexuality need
to be addressed and understood.
This information sheet cannot address in detail all the issues related to male
sexuality after SCI. For additional information, see the resources listed at the end of
this paper.
PHYSIOLOGICAL CHANGES
The level of spinal cord injury affects a male's ability to have an erection.
There are two types of erections that a male can have, psychogenic and reflex. A
psychogenic erection takes place when a message is sent from the brain, such as, having
sexual thoughts or seeing or hearing something stimulating or arousing. A reflex erection
occurs when there is direct physical contact to the penis or other erotic areas such as
the ears, nipples, or neck. A reflex erection is involuntary and can occur without any
sexual or stimulating thoughts.
The nerves that control an erection are located in the sacral segments (S/2-S/4) of the
spine. Spinal cord injuries that occur above these segments result in a loss of the
ability to have psychogenic erections. The male with spinal cord injury is no longer able
to achieve an erection by becoming emotionally or mentally excited; however, these males
may be able to have reflex erections with physical stimulation.
It is possible for males with SCI to experience orgasm, especially when concentrating
on their partners arousal.
The ability to ejaculate decreases dramatically after a spinal cord injury. The
ejaculatory process involves nerves from a number of different levels of the spinal cord;
therefore, it is likely to be affected by most spinal cord injuries. Ejaculatory rates
vary greatly and are dependent on several factors.
The most important factor affecting the ability to father children is the motility of
the sperm. The average motility rates among males with SCI are considerably lower than for
the average male without SCI. Because the ability to father children is often a main
concern of males with SCI, other options, such as artificial insemination with donor
sperm, should be discussed. Medical advice and options for males with SCI, who are
interested in fathering children, should be provided by a fertility specialist experienced
in spinal cord injury.
SEXUAL AIDS AND OPTIONS FOR THE MALE FOLLOWING SCI
Many males have erections; however, these erections may not be hard enough or
last long enough for sexual activity. There are several options available for males to use
for achieving erections, including penile injections, surgical implants, and the vacuum
pump.
Penile injection therapy involves injecting a single drug or a combination of drugs
into the side of the penis. This produces a hard erection that can last for one to two
hours. These drugs must be used exactly as prescribed by the physician. If not used
correctly, the result could be a prolonged erection, called priapism. When priapism
occurs, the blood fails to drain from the penis. This can damage the penile tissue and be
extremely painful. A person who has a history of substance abuse, therefore, would be a
risky candidate for this therapy since its success requires the exact use of the
prescribed drug.
Penile injections would be a difficult option for an individual with SCI with limited
hand function to use on his own. He must have a partner who is willing to learn to give
the injections.
Surgical implantation of a penile prosthesis was the more popular option for
individuals with SCI before the discovery of penile injections. The surgical procedure
involves inserting an implant directly into the erectile tissues. The three types of
implants available are semi-rigid or malleable rods, fully inflatable devices, and
self-contained unit implants.
With implants, there is a risk of mechanical breakdown as well as a danger that the
implant could push out through the skin. Individuals with SCI usually do not have good
sensation in the genital area. They would not experience pain to indicate that the implant
has broken through the skin. All surgical implants carry a high risk of infection. If an
infection develops, the prosthesis may need to be removed. Penile implants are the most
expensive option and some health insurance plans do not cover the costs.
The vacuum pump is the least invasive aid. It is the recommended alternative when
penile injection therapy is not an option. It is a mechanical, non-surgical method of
producing penile engorgement and rigidity sufficient for intercourse in most individuals.
The penis is placed in a vacuum cylinder. The air is pumped out of the cylinder causing
blood to be drawn into the erectile tissues. The erection can be maintained by placing a
constriction ring around the base of the penis. This ring also can prevent any urinary
leakage that can occur in the individual with SCI who has not emptied his bladder before
sexual activity or anyone who has a reflex bladder.
There are several models of vacuum pumps from which to choose. A battery operated model
is available for use by those with limited hand function. Other models require good hand
function to press the pump against the skin, creating the necessary vacuum. A prescription
is required to purchase the medical versions of these devices.
The use of some of the erectile aids may require assistance from one's partner. The
male may find it difficult to admit to his partner that he has difficulty having an
erection and needs assistance. Sexual counseling can help the individual learn to
communicate his needs and feelings concerning sexual issues.
Before using any of the erectile aids discussed above, a thorough physical exam is
needed by a urologist familiar with the benefits and side effects of each option as
related to SCI. The treatment options available for erectile dysfunction mentioned above
WILL NOT affect sexual desire, ejaculation, orgasm or sensation. They WILL NOT solve
unrelated marital difficulties.
EMOTIONAL/PSYCHOLOGICAL EFFECTS
Various emotional and psychological issues about one's sexuality need to be
examined and understood after a spinal cord injury. Following a spinal cord injury, people
are often sensitive about the physical changes which have occurred in their body. This may
result in a loss of self-esteem, especially in those who have to depend on others for
help. Throughout history, men have equated masculinity with sexual functioning. After a
spinal cord injury, it is common for males to have thoughts like, "I can't be a man
if I can't have sex with a partner in the same way that I did before my injury." A
male's self-esteem may suffer when this realization occurs.
An individual who has a partner at the time of injury may believe the partner is
staying in the relationship out of pity. He believes that his partner will eventually
leave him for someone who is "normal." Sometimes a male will actually "run
off" his partner with the idea that this way he will dissolve the relationship before
his partner leaves him. It is a mistake for the male with SCI to assume that his partner
will leave. Time and trust are means of testing the permanence of any relationship.
Males who do not have a partner at the time of injury are concerned with how to attract
and meet a partner. At first it may be more difficult to get out and go places where he
can meet potential partners. He needs to be encouraged to make the effort to continue
making social and business contacts, to meet new people, and develop new relationships.
Often the male has thoughts, such as, "I will never find someone to marry."
Most males are surprised to find out that this is not a problem. Some males who have a
spinal cord injury even report having an easier time meeting females now that they use a
wheelchair. When a male is attracted to a female who is not interested in him, he
naturally assumes it is because of his spinal cord injury. This is a mistake. During his
lifetime, a man may be attracted to a woman who is not attracted to him. Do not assume
that lack of attraction has to do with the spinal cord injury. Consider all personal
traits when examining one's relationship, such as, grooming, dress, manner of speech, and
personal interests.
RELATIONSHIP ISSUES
Partner Perspective
The difference between how the female views sex and how the male views sex plays an
important role in any relationship. A female typically places as much, or more, interest
in the emotional and romantic aspects of a relationship as she does the physical
relationship. After a spinal cord injury, the male needs to consider this in his
relationship with his partner. She may not be as concerned as he is about the physical
changes resulting from the spinal cord injury and how these changes will affect their
sexual relationship. Some women even report relief that sexual intercourse will no longer
be the most important part of the relationship.
The male can learn ways to be romantic and intimate with his partner. If the sexual
relationship was mutually satisfying before the injury, the readjustment often does not
present a problem. A female may first blame herself for not being able to "turn
on" or arouse her partner, even though she was told the spinal cord injury was the
cause of her partner's lack of erections. The male may need to reassure his partner that
the physical aspects of their relationship are satisfying to him.
Both partners need to understand there will be changes in their sexual relationship and
there are many considerations to building a strong relationship. The couple can explore
and experiment with different ways to be romantic and intimate that are sexually
stimulating and fulfilling for both partners.
Jealousy
In any relationship, jealousy can lead to anger and resentment between the partners.
Insecurity following a spinal cord injury often leads to the male falsely accusing his
partner. An example would be that whenever the partner is away longer than expected, he
becomes jealous, assuming infidelity.
Depression
Going home from the rehabilitation center after an SCI often results in a
temporary state of depression for both the male and his partner. Withdrawal, crying,
anger, and a lack of interest in sex may be signs of depression. The partner may
misinterpret these signs. Usually the anger is directed at the partner, creating
additional problems in the relationship. The partner may try to ignore these displays of
anger because of pity for the male with the spinal cord injury. If the signs of depression
continue in either partner, professional counseling should be sought.
Arguments
Money is a primary cause of arguing in most relationships; this may be magnified
after an SCI. Hospital bills and the permanent or temporary loss of an income creates
financial insecurity. Sometimes there are also role changes in the family. The partner may
now have to work to support the family. The male with an SCI may have to take over the
parenting and housekeeping roles. If each family member has a rigid view about his or her
role, this may become the source of many arguments.
Verbal or physical abuse
Verbal or physical abuse should not be excused. Having an SCI does not give the
male permission to be physically or verbally abusive to his partner. If either partner in
the relationship feels this is happening, they should be encouraged to contact a
professional in the community for help. The psychologist, counselor, or social worker at
the rehabilitation center are examples of professionals who could work with the couple on
these behaviors. Local community mental health centers and private licensed counselors are
also available in most communities.
Bowel/Bladder Accidents
Another physical concern is having a bowel or bladder accident. The fear of an
accident may be enough to keep the male from pursuing a physical relationship. He should
alert his partner to the possibility of a bowel or bladder accident. Maintaining a regular
bowel and bladder program is an important factor that can help prevent accidents. This can
eliminate the fear of accidents and relieve anxiety.
PROFESSIONAL COUNSELING
Establishing a healthy sexual relationship may require professional help.
Couples or individuals who get sexual counseling can learn effective ways to communicate
feelings. Studies show that males with SCI want information about sexual issues. Those who
receive the proper information have more positive sexual relationships. It may be
difficult to locate a professional trained in sexual counseling who is also knowledgeable
about the changes in sexual functioning after SCI. The American Association of Sex
Educators, Counselors and Therapists (AASECT) has set standards for certification of
professionals working in the field of human sexuality. AASECT can provide a list of
qualified professionals in your area. [See: Resources]
SAFE SEX
Today, everyone needs to take precautions to protect himself and his partner
from any sexually transmitted diseases (STDs) . STDs include diseases such as gonorrhea,
syphilis, herpes, and the HIV virus. These STDs can cause other medical problems, such as,
infertility, urinary tract infections, pelvic inflammatory disease (PID), vaginal
discharge, genital warts, and AIDS.
If individuals are not sure that either partner is disease free, each should be tested
by a health care professional. The safest, most effective routine to follow to prevent
sexually transmitted diseases is to use a condom with a spermicidal gel that contains the
ingredient Nonoxynol-9. The condom must be used correctly every time partners have sex.
The condom is often used as a method for birth control. Even if the female partner is
using another form of birth control, a condom still needs to be used to protect against
STDs.
STDs can be the cause of many problems if not properly treated. Some STDs can be
treated with antibiotics. Others, such as AIDS, have no current cure. The best means to
prevent infection is to first be tested. If either party has doubts about being disease
free or having any STD, they should use protection in their sexual relationship.
RESOURCES
Books:
Becker, Elle Friedman. (1991). Love, Where to Find It, How to Keep It. Bloomington, IL:
Accent Press.
Cole, Sandra S. (1993). Reproductive Issue for Persons with Physical Disabilities.
Baltimore: Brooks Publishing Company.
Cole, T., Chilgre, R., and Mooney, T. (1975). Sexual Options for Paraplegics and
Quadriplegics. Boston: Little and Brown.
Cornelius, D. (1982). Who Cares: A Handbook on Sex Education and Counseling Services
for Disabled People. Baltimore: University Park Press.
Ferguson, Gregory M. (1974). Sexual Adjustment: A Guide for the Spinal Cord Injured.
Accent on Living, Inc.
Hammond, M.D., Margaret, C., et al. (Eds.) (1989). Yes, You Can! Chapter 14-Sexuality.
Washington, DC: Paralyzed Veterans of America.
Kroll, L. and Klein, E. (1992). Enabling Romance: A guide to love, sex and
relationships for disabled people (and the people who care about them). New York: Crown.
Maddox, Sam. (1993). Spinal Network (2nd ed.) . Boulder, CO: Spinal Network,
pp.323-347.
Neistadt, M.E. and Freda, M. (1987). Choices: A Guide to Sex Counseling with Physically
Disabled Adults. Malabar, FL: Robert E. Krieger.
Rabin, Barry J. (1980). The Sensuous Wheeler. Long Beach, CA.
Sipski, Marca, MD and Glick, Tonnie, (Eds.) (1992) Spinal Cord Injury Manual. Chapter
8-Sex after Spinal Cord Injury. Northern New Jersey Spinal Cord Injury System, Kessler
Institute for Rehabilitation.
Sandowski, Carol L. (1989). Sexual Concerns When Illness or Disability Strikes.
Springfield, IL: Thomas.
Videos
Evaluation and Management of Sexual Dysfunction in Spinal Cord Injured Males.
(1988). Presented by Dr. L. Keith Lloyd, MD and J. Scott Richards, PhD. Birmingham, AL:
UAB-Spain Rehabilitation Center.
Sexuality Reborn. (1993). Produced by Dr. Craig Alexander and Dr. Marca Sipski. West
Orange, NJ: Kessler Institute for Rehabilitation.
Male Reproductive Function after Spinal Cord Injury: An Overview of Progress in the
Field. Fact Sheet No. 10. (1988). National Spinal Cord Injury Association.
Sexuality after Spinal Cord Injury. Fact Sheet No. 3. (1987). National Spinal Cord
Injury Association.
Male Spinal Cord Injury and Fertility. (1992). Shirley McCluer, MD. Arkansas Spinal
Cord Commission.
Vibrator Technique for Ejaculation. (1992). Shirley McCluer, MD. Arkansas Spinal Cord
Commission.
ASECT
The American Association of Sex Educators, Counselors and Therapists.
435 N. Michigan Avenue, Suite 1717
Chicago, IL 60611
(312)644-0828
SIECUS
The Sex Information and Education Council of the U.S.
130 W. 42nd St, Suite 2500,
New York, New York 10036
Information Service available Noon til 5pm (EST)
Mon-Fri. (212)819-9770
Developed by:
Jane Brown, MA, LPC, AASECT
Linda Lindsey, MEd, Media Specialist
© 1993 Board of Trustees of the University of Alabama
The University of Alabama at Birmingham provides equal opportunity in education and
employment.
This publication is supported in part by a grant (#H133B80012) from the National
Institute on Disability and Rehabilitation Research, Dept of Education, Washington, D.C.
20202. Opinions expressed in this document are not necessarily those of the granting
agency.
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